Monday, 23 May 2011

Unwell,unemployed and moaney,

Well that did a lot of good,or rather not,all tests come back negative,no leukodystrophies,heritable spastic paraparesis or rare copper metabolism problems,no thyroid or diabetic issues and no neuro-syphilis ,in fact I am perfectly healthy except I don't function properly,it would seem according to docs that I have either an unknown neurological condition or MS that just isn't testing positive.This exciting news means that I can expect absolutely no treatment for the time being,In fact I am currently getting less relief than last week.
I went to my GP to ask again if I can have any help with my seriously debilitating fatigue,she promptly took me off the antispasmodic baclofen as 'they can cause fatigue' I explained I had suffered with fatigue on and off for several years before any other symptoms showed themselves to no avail,I am now fatigued and full of cramps,spasms and spasticity.......
Daughter has gone off to Australia for her year,various members of the family saw her off from Heathrow,Rory and his daddy found a taxi to play in whilst there
she is such a busy bee,instead of having some fun she starts an accounts job Thursday, less than a fortnight after arriving! She has sent back picture of beaches and fruit bats and cockatoos via facebook and hopefully we will be arranging a skype schedule for video calls,don't tell her I said so but I miss her nightly moany phone calls.
Her moggies are well settled now and have arranged a truce with my Lucifer cat,in fact Claude her slightly simple cat has developed a fondness for my crochet blankie in progress and Charley the big ginger and white cat has taken possession of my sheepskin rug.

Tuesday, 3 May 2011

Life in the strange lane.

I am still waiting for the results of my LP, MRI and what seemed like 8000 blood tests that were all done at Addenbrookes on 17th march.
I usually see a neuro at my more local hospital,so I rang there again today to see what was going on.
The neurology department haven't even bothered turning off their answerphone today!
So I took things into my own hands,I rang Addenbrookes where the tests were done,they sent the test results to my local hospital on 12th April and cannot give me the results over the phone,but the really lovely lady I spoke to is going to fax the results to my GP ,I am then seeing a doctor on Friday.........not my usual GP she is on maternity leave(I am doomed,my life is never simple)
Now you may think I am kicking up a lot of fuss,but things don't seem to move along unless I kick them :-)
The reason behind all this is my beautiful  grandson,I just want to be sure I don't have a leukodystrophy that could kick in and affect him badly.I am sure you have all heard of Lorenzo's oil and therefore adrenoleukodystrophy.
As it stands I still think I have MS albeit an unusual presentation or I have conversion/functional/software disorder.
I swear I have probably read more neurology books,papers and ideas than some neurologists have.
Things are moving along on daughter off to Australia area too,I now have her two moggies in residence and they are being fairly good,although Claude, the small village idiot version of a cat, just cannot work out a catflap so, is having to have a litter tray for now,much to my disgust.
Sarah is doing her rounds of goodbyes and doesn't yet know we are springing a big get together on her on Sunday ahead of her leaving the following weekend.
I am to become redundant as of 21st of this month,I rang the social who tell me I can apply after the 16th.
It is quite frightening to think that if my health doesn't improve I may never be offered work again.
Sid my oldest ex battery hen is really showing signs of slowing down now,I expect she won't quite make the second anniversary of her release on the 16th May.