Today I am really low on spoons I tried to get up this morning and the muscles in my back were as solid as a whalebone corset,
I managed to shower and dress went down the garden to feed the chicky doodles only to discover by falling in the back door that I can no longer lift my right leg high enough to get up the step.I went to work,I can still ride the bloody bicycle although getting on and off it are becoming increasingly comical,they are on holiday in Thailand(lucky sods) so I have the job of feeding and watering the cats and the chickens,I went to fill a jug with water only to discover the weight of a plastic jug and a pint and a half of water were enough to set my arm shaking so badly I dropped aforementioned jug,luckily it landed in the sink,I had a cup of tea and a think then took out two half filled jugs to the chickens.
When I got home I was feeling pretty damned down,even more so when the postman didn't bring an appointment from the hospital for a brain scan.Having sat snivelling to myself for a while I took a decision,I got myself an afternoon appointment at the docs,I was seen first by the young doctor who then brought in someone else who also went and got another doctor,having said how "disabling" my condition is becoming they are going to try and persuade the neurology department that I need to be soon PDQ,sadly there isn't an appointment available for a brain scan until 24th of november,so I will have to go back to neurology again soon after that.
All of this just as our kindly overlords are showing an extreme aversion to noblesse oblige and making going on the sick virtually illegal,I am so bloody scared now.
If you are affected by the government cuts and are disabled or a carer go have a look at this site.A bit of activism is good for the soul. Broken of Britain
10 years ago
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3 comments:
The spoon explanation was very revealing. And you must conserve those spoons until you get a diagnosis, so take it very easy and look after yourself.I'm glad you've got an appointment and they're on the case, now keep pushing. And yes, a little activism is called for, God help 'em all. xxx
Very good in-sight explanation of disability, and the problems of day to day living in that 'spoon theory'
I can only repeat what SSG has said. As your friends we want you to get some explanations and more importantly treatment for what ever condition is causing your symptoms.
(((((Hugs)))))
I guess (hope) that the doctors have looked at any medication you may be taking? Statins for example can weaken muscle tissue.
I know it is easy to advise you not to get too stress and wait patiently for the appointment but ...
I shall tell you a little story ... a work colleague was waiting for an appointment. In the meantime she became ill at work and they called an ambulance. On arrival at the hospital they did all sorts of checks - the very checks in fact which she was waiting for ...
I wish you a speedy return to good health. xxx
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